Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome
Los Angeles, CA
Based in Canada
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The Visual Snow Initiative and our Founder Emeritus, Sierra Domb, were recently featured by #CNBCCures, bringing #VisualSnowSyndrome (VSS) and the power of patient-led advocacy to a major national platform dedicated to rare diseases.
Read more: visualsnowinitiative.org/col…
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Growing up, I always thought everyone saw the world the way I did. For as long as I can remember, my vision has been filled with millions of tiny dots, along with lingering afterimages, flashes of light, and shapes that would remain even after I looked away. Whenever
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them altogether.
If you’re reading this and you have Visual Snow Syndrome, I want you to know something I wish someone had told me years ago: you are not alone. There are thousands of people who understand exactly what you’re experiencing. Keep asking questions, keep advocating
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For some people living with Visual Snow Syndrome (VSS), symptoms may feel different during periods of hormonal change, including the menstrual cycle, PMS, PMDD, pregnancy, and menopause.
Some patients report changes in symptoms such as:
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❄️ Visual snow
Palinopsia / afterimages
💡 Light sensitivity
⚡ Migraine
However, experiences vary significantly, and many people may notice no hormone-related changes at all.
🔬 The relationship between hormones and VSS remains an important area for future #research.
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Understanding these potential connections may help researchers learn more about why symptoms
fluctuate and how care can become more individualized.
🔗 Read the full article through the following link:
visualsnowinitiative.org/res…
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🧠#Hormones do much more than regulate reproductive health. Estrogen and progesterone also interact with brain systems involved in sensory processing, neurotransmission, pain sensitivity, sleep, stress, and neural excitability.
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#Neuroplasticity is the brain’s ability to adapt and reorganize the way it processes information in response to experiences, learning, and changes in the nervous system.
In #VisualSnowSyndrome (VSS), research suggests that certain brain networks involved in visual and sensory
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processing may function differently. This is why neuroplasticity is an important area of interest in VSS research.
By better understanding how the brain can adapt and change, researchers are exploring whether neuroplasticity could help influence how the brain processes
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visual information and potentially contribute to future approaches for managing #VSS symptoms.
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With publication funding provided by the #VisualSnowInitiative, a new study from Japan published in Cephalalgia is helping expand our understanding of #VisualSnowSyndrome (VSS) and its relationship with #migraine. 🇯🇵❄️
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Researchers also observed greater anisometropia among people with VSS. Anisometropia refers to a difference in prescription strength between the two eyes. This finding is still considered preliminary and requires further research to understand whether it has any
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significance in VSS.
Overall, the findings add to the growing evidence that VSS and migraine frequently overlap, while also introducing new questions for future research.
🔗 Read the full article via the following link:
visualsnowinitiative.org/res…
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